After the joy of fixing some things in my life and enduring others I am retreating back into Netflix. I started a post last week during my third flare episode of the month. Writing it out during the last few waning minutes was a good distraction. I'll be able to show the neurologist next week the video of the first one. I am less and less confident however that it will make a impact. For one my occilatory movements aren't visible when I'm lying down though that's half the reason I stay in that position. It was nice however to watch a film series for medical students and see my type of dystonia clearly represented. I am still baffled by my SSI records that I haven't looked through much.
I still have this dumb idea that the show House might give me a diagnosis by accident or maybe just something to bring up to my doctors. Having just watched the episode where Gregory is forced to attend his fathers funeral no doubt my mind drifted to my own dad. Something he told me at his last dinner with me is that he has conductive heart disease/disorder. While vegging out my brain ran smack into the thought that his heart problem has probably been causing his blackouts all my life. I had been talking about his EEG with my guy today on our way to pick up a new mattress from Art Van. Indeed they never found a neurological problem to explain his episodes. I have my own EEG scheduled for late this month in which the doctors will be trying to stimulate dystonia and or seizures.
I never did go back for further sleep testing even after I was told Nocturnal epilepsy runs in my family. Something new will be mention of my elevated serum copper levels during the time of my first hospitalization. Sciatica has become my worst enemy for this week which is a nice change from dystonic storms.
No comments:
Post a Comment