Tuesday, April 8, 2014

Borg Ocular Implants don't Itch

This was a interesting followup to my older sets of MRI. I had been reccomended to see a opthalmologist after my nerve conduction testing in early 2012. Of course I can only handle so many doctors here so since I had just gotten glasses I put it off into my to do pile.

I gave myself a few months off after the last disastrous neurology appointment. In fact I hadn't gone back since before my move to mid Roseville. Ironically I showed up early only to find I had been scheduled at the office south of my new home. That office is much more vacant and thus keeps appointment times better. I also saw a secondary physician who knew of my case already.

My chipper attitude is something all my doctors remark upon as helpful but it only exists in cases where I am not receiving poor care. I believe if I stay steady at this Eastpointe office I will be able to stay positive about the neurologist again. I even got some answers this time about my spinal tap and 72hr EEG. Most importantly the banding in my serum and CNS is matching meaning my phantom condition is systemic not just neurological. Anyway I left that office with another upcoming MRI and a two page list of blood work testing.

Finally working on my eyes was interesting. The vision field test and cornea scan indicated a dead spot on my left eye and neuritis that was inactive in both. When I came home bragging that they found something my cousin and roommate pointed out that it could impact my driving ability. Luckily the position of my vision loss is only a small slice of lower quadrant. Less than 10% of my vision region I would gather from the charting I peeked at. The left eye I also believe is the same that my sister is now legally blind in. As I was warned by a optometrist might happen to me. Taken with my spinal results this should mean MS is finally off the table.

I am actually kind of sad about that since the easiest way to describe my condition was the terms for flare and exacerbation. There is however some light at the end of this tunnel. I have gotten together a medical binder about 3 inches or more thick that is organized. In doing so I looked back at my diagnosis on file with the oncological hematologist, polyclonal gammopathy. In my search to make sense of all this pain and annoyance I came across two conditions of interest. One is a sister condition of MS and the other is a syndrome set of a progressive neuropathy with polyclonal gammopathy and sojourn's disease comorbid. Of course caution has to be taken before I adopt another terminology for a differential diagnosis. As my hematologist said my doctors can only give sympathy as my disease blooms into something more typical. My team slogan remains "Your to young to have this!"

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