Thursday, February 21, 2013

You Green-Blooded Son of a Bitch!

It's happened. I've finally had another attack. Maybe I should say I haven't had another attack. Between the insomnia prior to the Sleep Study and difficulty eating on metaformin my body went nuts. I've been having serious dystonia in my sleep and noticed twitches in my hands and feet while awake along with the usual painless spasms everywhere. After a trip to the ER with my mom when I threw up food I'd eaten for the last two days before I thought it was a gallstone attack. It was awful I was so out of control I pooped my pants and lost feeling in my legs. It took two people to redress me enough and get me too the car outside. Then came the fever and cold-fire burning in my arms. The game was a foot!

Since it all happened the week of my 72 hour EEG, I was at the office while I was heavily symptomatic. They decided to take me back thanks to my Mom's pressuring and I met the doctor who runs the practice. He put me on steroids and a nerve suppressant called Nuerotin. I sat through maybe 2 days worth of a serious attack before the steroids have killed it almost entirely. I almost can't believe how simple it was. Secretly it pisses me off that I may have only needed steroid therapy back in 2011 when I was bedridden for almost 5 months. Honestly however it is more important not to suffer through it again.

I could have lost my place in finishing my Bachelor's degree and my student loans would have gone kaput. That would have been a huge blow since I'm already putting together my application for a Master's degree. The exciting news is that my spinal fluid was positive. Antigens, antibodies and proteins, oh my! Since the antigens were in both my blood and spinal fluid they have said I don't have Multiple Sclerosis. My phantom condition must be an Autoimmune disease according to their findings. On Saturday I have a followup MRI and a meeting again with the head doctor on Monday. I am happy with my dose of nuerontin but it is another addictive substance...oh joy. The only side effect I have from it is a bit of headache and balance issue which I consider minor. The nerve action is continuing it's just suppressed. I can feel it but painlessly more of an irritation. The odd part was during this attack I noticed it was in my feet as well. I hadn't recalled any pain in my feet the first occurrence. So I am rooting for it being Lupus or Steroid Responsive Encephalopathy. With how involved the head doctor at the practice is now I'm thinking he believes he's discovered a new illness to name after himself. Ugh!