Wednesday, January 16, 2013

He's not your Friend, Buddy!!

So I've just gotten back from the Nuerologist with smooth sailing. While I expected to once again feel shafted by not seeing the Doctor himself and worse over having to pay a 100$ no-show fee for an appointment they asked me to reschedule...neither happened. There was no battle to the death about the bill. It was waived with a quick explanation and verification that I was rescheduled the day of my "missed" appointment. Though I didn't see the named doctor on the office title outside I did see the same Physician who sent me on my way to Dr. Sabir for Oncology/Hematology. This woman has a great manner about her even with my blabbering.

The nerve function results showed some difference in my Right/Left median nerve test but not enough to be dangerous or even worrisome. The brain lesions have had no change. They are still small and only two in the deep white matter of my left juxtacortical section. Apparently this is my parietal lobe and I have no idea what the actually might indicate except for being centered to the left I would assume affects my right side body functions. The next round of ANA was negative for Lupus which is about 5-6 tests in total.

So I've been given a set of instructions that will self destruct at the end of this message...just kidding. My sleep study is finally happening the end of this month which reminds me my sleep diary begins tonight. On Friday I will return to the Endocrinologist for a 'ye or nay' regarding my possible hormone disorder and insulin resistance. She also did a ultrasound of my thyroid which I believe was unremarkable due to it's size and featureless state. As I said in my last post I am Diabetes free which was a relief since meter strips are frighteningly expensive.

It seems we are down to two most likely causes of my symptoms, a relapsing form of MS or this familial nocturnal epilepsy from my grandmother's family. So I'm supposed to see an eye specialist for optic neuritis which might be pointless since I haven't had a worthwhile flare since I suddenly needed glasses. Otherwise it's just  more blood work, the sleep study , a 24hr EEG (if they can swing it with Medicaid) and a lumbar puncture of the first of February. I'm hoping something comes back obvious and positive so this mess can start working out.

I stupidly asked for an opinion on my graduate application materials recently only to find out that some of my family doesn't support education for disabled students. Not being able to work somehow equates taking up space for a real student. You might as well shoot a puppy in front of me. Perhaps they forgot I got my start in a Social work program. I am beginning to struggle again a bit in school but I almost have my Bachelor of Arts, which I plan on celebrating with a class ring that I always wanted from high school. Perhaps I will transfer back some credits to Macomb to finish out my AA. SW degree as well though it's fairly unnecessary since I have two associates already. All this over achievement is tiresome but I'm not where I want to be yet.


EDIT: Found an article about my specific type of lesions, http://www.ajnr.org/content/20/1/
They are linked to memory dysfunction in early stage MS patients. Interesting!