Its funny sometimes the warnings they give about drug side effects. It can be a reminder that one is human like everyone else or that one is also unique. I've acquired a new medicine for my heart which as a beta blocker is supposed to cause nightmares and night terrors. Ironically it seems to have evened out my sleep and turned psychological over stimulation into more abstract storytelling.
Indeed during my short stay in the local hospital at the end of January I actually had a sleep paralysis event while fading in and out on the gurney. I was pleasantly surprised when the real nurse woke me up since the dream doctor I had been talking to was telling me I was having a heart attack. It had been like that for some nights now prior to my actual and apparently snowballing cardiac event. So they did their due diligence and checked me for PE's, clots and heart failure. Once again it came down to sinus tachycardia but this time is was persistent and not episodic. Speaking of due diligence they were even kind enough to provide a breathing treatment when I mentioned I had recently finished a cold. To make the event more fun my heart rate would decrease temporarily if I was laying down on my left side. Because God forbid anything that happens with me be cut and dry.
The sleep paralysis is rather annoying because I have been getting the waking kind where I believe I've been released from dreaming already and then WAM! something super scary happens. I have already asked my husband to wake me if he hears high pitched whistles or rapid groans from me which indicates an event. He's just not on top of that sort of thing which makes sense since my family is known for having Somniloquy. Waking me up under normal circumstances often leads to a battery of cuss words and comments from my unconscious self.
More scary than being trapped in a deadly situation (real or imagined) is that I received my SSI review paperwork. I immediately filled it out and sent it off though I did repeatedly misunderstand one of the fill-in categories. A bit odd to ask what treatment you get but then say not to describe tests, procedures or medications... Regardless I am worried that I don't understand still quite why they so easily approved me. I worry that I left some data out or the fact that I don't currently have a new neurologist will hurt me. I am still annoyed that the physician assistant I saw at the second office wouldn't listen about my closed spinal injury. Truthfully I don't quite understand it myself as to whether it is a disease process in my lumbar region or just a bone/cartilage injury that isn't healing.
Constantly lately I have also been a bit obsessive with worry on any stressful topic. So now I have thoughts of "Did I include the right data?", "Will my lack of new neurology records affect my case?", "Might my doctors not support a disability claim because they see me for individual diseases?", "Do I seem too active because of my social media accounts?". I can only know personally that when I have good days I can get a lot done and when I am symptomatic I cannot accomplish anything and require a caregiver. My entire family knows I exaggerate my activeness on social media barely able to scrape together photos of me outside of my home. My issues with pain are also still not addressed by anyone which as I said about my spinal problem means I should get a lumbar MRI. Right now I also have a painful rash that is persisting as well and unresponsive to fungal medicines. Even my asthma medicine seems less effective. I just hope when I can get it biopsied that it may help in providing an umbrella diagnosis. I hate being bits and pieces.
