Tuesday, December 13, 2011

Not all handshakes are greetings

Hand tremor was one of my first most obvious signs of neurological illness. Normally I would be grateful to my quirky shaking right arm but it honestly caused me more trouble than it brought solutions. Apparently there is simply no getting past the fact that there are too many junkies out there my age. Tremor being a big sign of withdrawal, I was turned away from care about fives times before my first grand mal seizure and rigidity episode.

That shaking hand even lead to the exact medication being prescribed for my stomach condition and tremor (Promethiazine and Zofran) which turned out to cause a stroke thanks to nueroleptic malignant syndrome. What trully got me hospitalized was the aftermath of my allergy and it's stroke. I can barely recall how bad it must have looked with me rigid on the gurney unable to speak my name clearly and my whole right side tremoring.

What seemed more interesting to the neurologist who saw me in the morning after was my lack of sensitivity in my face (Parkinson's masking), abnormal eye movement and almost no reflexes in my legs. The EEG was a complete trip. I already was experiencing vertigo and seeing flashing lights. During the test I recall seeing a lot of purple walls and more flashes. The hardest part was the light strobe test to which it had to be halted because I began to seizure.

That dirty word reimbursement kept me from receiving a followup with the neurologist so instead my county clinic doctor continued the Cogentin out until the point that I began to have a heart arrhythmia. A day after what turned out to be heat stroke she sent me into the ER because of a EKG she said was bad. The withdrawal from Cogentin was long and hard (future post discussion) but eventually I got to how I am today. Eating small portions, suffering but at least in tact.

My hand tremor is still there but seems to not affect me most of the day. I have instead developed into generalized dystonia which causes fits of myclonic activity. These are always worst in the morning, when I am over exhausted or if I am exposed to strobing lights. The Parkinson's and dystonia have both progressed again because of exposure this past week to nueroleptics. I doubt I will ever get any medical professional to work around the fact that I am allergic to more than half of the available drugs in all of pharmacology.

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